Thread
:
New to pure red cell aplasia
View Single Post
#
26
Wed Dec 31, 2014, 11:34 AM
triumphe64
Member
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
The congenital form of PRCA is called Diamond Blackfan Anemia.
Here is a website. There are others.
http://dbafoundation.org/learn-more/
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group
https://www.facebook.com/groups/PureRedCellAplasia/
triumphe64
View Public Profile
Find all posts by triumphe64