Hi Ray. My GVHD was never severe, but I've had pretty severe dry eyes off and on for a few years, some skin rash, etc. I did have some photopheresis treatments which seemed to help, and I have not taken any steroids for quite a while. I was treated for my GVHD w/ Nilotinib with pretty good results. It is a very expensive drug normally used to treat some forms of leukemia, but some studies have shown good results in some forms of GVHD. Some insurance companies, like mine, may not cover the costs, but your doctors may have ways around that. My previous insurance copmpany, which was a large HMO, did cover the cost with no issues that I was ever aware of. Here is a link to one of the studies
http://www.bloodjournal.org/content/...o-checked=true
good luck in your treatment.
Mario