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Old Mon Apr 4, 2016, 08:20 PM
rar rar is offline
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Join Date: Mar 2014
Location: colorado
Posts: 215
Hi,

Thanks to all for posting relies. I will look at the Tasigna and Sprycel. I have VA for a drug plan. It is not on the formulary. In the past they have supplied non-formulary drugs. With the VA there is no deductible or co-pay. The oncologist thinks my GVHD is not that bad and photopheresis is inconvenient. I am willing to try if I could get off prednisone.

DanL, can you point me to the 20 drugs that work for GVHD? Did you have a port for the photopheresis or was it IV in the arm.

Thanks to all

Ray

Here is a list of my drugs. I take them either 1,2, or 3 times a day. Pred is once a day. PREDNISONE 5MG TAB, MAGNESIUM OXIDE 420MG, TACROLIMUS 0.5MG CAP, CMP-DEX ELIX/DIPHN, TRIMETHOPRIM/SULFAMETHOX DS 160/800, CALCIUM 600MG/VITAMIN D 400UNIT TAB, OMEPRAZOLE 20MG EC CAP, ACYCLOVIR 800MG TAB, SODIUM FLUORIDE 1.1% ORAL CREAM, MICONAZOLE NITRATE 2% TOP TINCTURE, AMOXICILLIN 500MG CAP, CYCLOSPORINE 0.05% (PF) OPH EMUL 0.4ML, FLUCONAZOLE 200MG TAB, DESONIDE 0.05% CREAM, CIALIS 5MG, NATURE_THROID 194.6MG, LUNESTA 1.5MG, MELATONIN 1.3MG
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