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Old Tue Apr 5, 2016, 07:28 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Ray,

I have a trifusion central catheter that facilitates photopheresis, I understand that they can do it with a needle on the day of, depending on how frequently you need the photopheresis. The smaller pic lines cannot accommodate the flow required to get it done. Have you tried sirolimus yet? I know that some of the doctors that I have spoken to like this quite a bit.

Here is a list that I found:

http://www.cancerresearchuk.org/abou...-treating-gvhd

I hope this helps.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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