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My wife Ruth and I were glad to join the efforts yesterday. Either together or separately we participated in 9 of the 84 meetings, teamed with others from our state, just as other patients and family members were doing for their own states.
It can be intimidating at first to enter a representative or senator's office and be ready to sit down with them or their legislative aide to explain a bill we want them to co-sponsor and why it's so important. It made for a mentally and physically taxing day, but it's our right as Americans to talk to those who represent us. Every one of the grass roots advocates -- meaning the regular people like us whose lives were turned upside-down by bone marrow failure -- contributed to yesterday's effort and it was great to see the wheels of government in action for a good cause.
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