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Old Wed Jan 11, 2012, 08:59 AM
Marlene Marlene is offline
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,348
I suggest you get a consult with Dr. Robert Brodsky at Hopkins for the Cytoxan protocol. He's your best bet to get the latest stats on the treatment and can answer all your questions. Search on high dose cytoxan and you'll find some post on the treatment. HiCy has better outcomes when it is the first line treatment for AA. The outcomes are lessened when it is used after ATG has failed.

The best advice I can give you at this point is to explore all your options and then go with the one you are most comfortable with. So many things come into play when deciding on a course of treatment. And it is important to be treated by a doctor at hospital with experience with AA.

You will find that everyone has a different journey no matter which treatment they decide upon. And no one can predict how you will react or what your personal outcome will be.
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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