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Old Wed Mar 19, 2008, 03:54 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
My husband has MDS

Dear Lillian,
As far as I understand most people with MDS don´t know how they have got the disease. There are probably many explanations.

When I got my dx I had never been ill before and had not had any examinations. Perhaps some virus infection without much other symptoms has changed my stem cells in the bone marrow. I thank God because I have had a good life with a wonderful family and an interesting job .

I miss my grandchildren very much and they miss me - I am so afraid of infections that we only meet when we are sure of that they don´t have any infections .

Aug 2007 I got sepsis after a tonsillitis and since then my WBC count has been very low. I have to take Neupogen injections 2/week but I don´t trust the WBC:s I get from Neupogen because they can be immature and perhaps not fight of infections as well as WBC:s should do.

Hopefully Randy has good effect of the infusion for his bones! I am sure your strong support helps him to fight the battle.
Hugs
Birgitta-A
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