i am sorry to hear your so stressed im afraid i cant help you with your queries but i can say i have felt like you do for a while now and its horrible.myheart goes out to you.i try to go for walks get interested in the computer and i try to read ...i wanted you to know your not alone although there are days i feel that way too.I hope it helps you to know there is an aussie lady in a small country town in queensland australia who cares enough and midnight when she cant sleep to say hello to you and hope you have a lovely day, the day you read this..take care Juliania
aussie Danielle
Quote:
Originally Posted by Julianna
Hi everyone. Haven't been here for a while. I'm a little bit stressed (well actually that's an understatement). Sorry if this all comes out quite dramatic...but that's me. And I'm a bit scared too.
I had my first platelet transfusion today. Had to travel 4 hours round trip to just get treatment that I really needed. I've been sick with infections during the past year which for some reason depletes my red cells, so I need them too. But only sometimes. The rest of my days I seem really well.
But I live so far from the city hospital - the only place I can get platelets. And that scares me. It was a really close call yesterday, but I'm glad to be safely home now filled with fresh platelets!
I read somewhere about very low platelets being a poor prognosis. Bleeding being a main cause of death. Is this something should be worried about? Of course, most people would say that worry doesnt add one day to your life. So don't worry. But I'm plainly....scared. Would I know if I'm bleeding inside? What does it feel like?
I had a really bad sleep last night. Worried about these things. Hope to sleep really well tonight, being saved by my platelet transfusion.
I don't know how I can keep living like this. The uncertainty will probably kill me before the disease! I've been so stressed out. Feel sick with anxiety.
Thanks for letting me vent. Does anyone know what I'm talking about? And what do you do to keep calm over such LONG periods of.....up and down, sickness and wellness. I don't know how much of this I can stand.
But I guess you just have to. Day at a time hey? Thanks.
|