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Old Mon Apr 11, 2016, 09:20 AM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Vidaza Starts Today

Hey DanL!

Thanks for that advice and for sharing some details about your experience.

In fact, I begin Vidaza this afternoon, as a bridge to transplant. My local Hem/Onc, as well as the folks at NIH, recommended that course of action -- possibly because my blasts are already at 15%, so I could slide over into AML before we get the transplant set up.

I'm curious about your experience with Vidaza, though I know it was only two months. Did you find that it totally wiped you out, or were you able to continue working while being treated with the drug?

I'll know soon enough, I suppose, how it affects me; but the experience of some folks that I have read about indicated that they were pretty wiped in weeks two and three.

Thanks!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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