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Revlimid was the first choice next step offered by Bruce's hematologist (not an MDS Specialist), though Bruce does not the 5q del.
After Aranesp failed this year, the Hem consulted with Dr. Paquette, who also mentioned the clinical trials of Revlimid.
So, it seems like Revlimid is very popular choice right now. One bit of good news is Revlimid has been around long enough that there is reasonably good data about dosages and side effects.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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