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I think that the list that Cathybee provided is a very good starting point. I would add a couple of questions to the list since they are not always explicitly covered in a conversation about treatment. 1) Is a transplant right for me? 2) Should we begin a search for a donor now? 3) do you have any cytogenetic anomalies and how do they affect your prognosis?
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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