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Old Tue Jul 17, 2012, 04:56 AM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
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Hi, I haven't posted in a while, but do come by to see what's new...I've heard or rather know of only one person w AA who has done well using an alternative method instead of (ATG/cyclosporine). I believe her name is Marla Brown...I'm not sure if she visits this forum though. BTW, If I recall correctly--I think her method only involved juicing though. She did get supportive care via transfusions for quite a while till things turned around for her.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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