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Old Sat Sep 13, 2008, 12:20 AM
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Rep. Matsui Introduces BMFD Research and Treatment Act (HR 6884)

This week, Representative Matsui formally introduced the "Bone Marrow Failure Disease Research and Treatment Act", now known as HR 6884. This legislation would bring together the resources of several federal agencies to advance our understanding of and treatments for aplastic anemia, MDS, and PNH. You can read summaries of the bill and the legislation by visiting the AA&MDSIF’s HR 6884 Advocacy section.

Thanks to the grassroots efforts of patients and their families nationwide, more than 300 Congressional offices are already aware of this legislation. In addition, Rep. Matsui has sent a letter to all of her colleagues in the U.S. House of Representatives asking them to co-sponsor this bipartisan legislation.

The following Members of Congress have signed on as original co-sponsors:
Chris Van Hollen (D-MD)
Sanford Bishop (D-GA)
John Doolittle (R-CA)
Robert Etheridge (D-NC)
Jim Ramstad (R-MN)
Pete Stark (D-CA)
JoAnn Emerson (R-MO)
Jason Altmire (D-PA)
Henry Waxman (D-CA)
Peter King (R-NY)
Jan Schakowsky (D-IL)
Madeleine Bordallo (D-Guam)
Diana DeGette (D-CO)
Jim McGovern (D-MA)
Jim McDermott (D-WA)
If your U.S. Representative is NOT on this list, please contact him/her today and request that they co-sponsor this important legislation! You can contact their local office in your home area, as well as email their Washington, D.C. office. If your Representative is already a co-sponsor, be sure to call or email them to thank them for their support.

The timing is critical. Congress is expected to adjourn in a few short weeks, so our time to act is very limited. Please ask your family and friends to join you by contacting their representatives.

More information on how to spread the word about HR 6884 will be forthcoming from the AA&MDSIF next week. Get ready by visiting the websites for your local radio and television stations and newspapers to locate an email address for a local health or metro reporter or the news director. If you can't find the website, make a call and find out who should receive the information. Keep this information handy for the next call to action.
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