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still not receiving vidaza
Hi Amy & Birgitta,
Thanks for the encouraging posts. After reading some of the earlier replies, I contacted my doc at U of Chicago and voiced some concerns. I am seeing Dr. Van Biesen and Dr. Ramsdale. They assured me that I am being closely monitored and that there truly is no sign of MDS at this time. I'm going to go with their recommendation to not resume Vidaza. I have follow-up apptointments already scheduled with them. Thanks for all of your concerns and info. It's been 2 months w/o chemo and I am feeling better than I can remember feeling. If I've learned anything about this disease, it's how complicated it can be and that results vary so differently among the individuals fighting it. I'm wishing the best to all who are here. My thoughts and prayers are with you all.
Kathy 
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Kathy, 47, diagnosed with MDS IPSS Intermediate Risk, Refractory Anemia and Thrombocytopenia both secondary to MDS. 8/06-treatments include 14 shots Vidaza monthly, aeranesp, neulasta when needed also have polycystic kidney disease
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