I'll let others more knowledgeable than me answer some of this, but you don't say where you're located - is it possible for you to be referred to an
MDS Centre of Excellence near your for a second opinion? It sounds like the current team aren't even certain of the diagnosis, and a lot of the different MDS variants have very different treatment options.
I'm confused as to why they tested you for a bone marrow match - it's usually only siblings that could possibly be a close enough match...
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!
I've run 5 marathons now!! (PB 3:30!)