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Old Tue Jul 17, 2012, 03:43 PM
Ryan Jay Ryan Jay is offline
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Join Date: Aug 2010
Location: Massachusetts
Posts: 106
ATG...it is?

Pete,

Have they explained to you why they are going to look for an unrelated match this quickly? Did they mention that the potential MUD (matched unrelated donor) would be a backup or first line?

Just good to know what their thinking is. A first line MUD is very rare from my layman's understanding of how to treat this.

Remember, you are on a different path than the BMT, but one that has roughly comparable long term results. So don't look at it as a setback.

ATG can be rough stuff, but a ton of us on here have been through it with different ranges of reactions. I felt okay when I was getting it, but then the following three weeks were absolute hell! It paid off.

Some of us had absolutely atrocious counts. My hemoglobin was at a 4, my platelets were at a 2 and my whites were down to 1.6. So anyone can bounce back.

Stick with us here and we can give you a veteran patient's perspective. PICC lines, photophobia...all kinds of weird things that you never thought you'd ever have to deal with.

Good luck.
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Ryan Jay: 38-yo, dx SAA: 7/25/10, ATG: 8/10/10. CR with counts still rising. HGB: 13, Plt: 137 WBC 5.1 ANC
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