Hello Teo,
I am sorry I do not have any advice to give you, as I am new to the forum and this dreaded MDS
. But I hope you will be able to help me with my questions on EPO.
My mother was given EPO(Eprix) 40,000 weekly for 8 weeks. Doc discontinued saying there was no benefit to her as her transfusion interval did not go up. We do not know her base Hb, so the benefit could only be seen by increased transfusion interval which did not happen. When the Hb goes below 7, she gets 2 units.
I am glad your mother responded to EPO.
Did her base Hb go up or transfusion interval go up? How long did she get EPO before seeing benefit?
Your mothers dose of 2000*3 times=6,000 weekly is much lower than my mothers dose of 40,000 weekly, are we talking of the same EPO or different forms
?