Hi Mseth,
Sorry for the late answer - I am having problems with my pc
.
If you read the programme from the Nordic MDS Group (page 18-) about EPO you will find that they (professor Eva Hellström-Lindberg, a very well known MDS researcher) recommend:
1 Start with EPO 30 000 U/week during 8 weeks - 60 000U/week if the patient is transfusion dependent.
2 If the patient isn't responding add Neupogen or a similar drug (stimulates the bone marrow to make white blood cells) for another 8 weeks. If no response the treatment should be terminated.
The combination EPO and Neupogen or similar drugs for better response is well known since many years and has nothing to do with the patient's white blood cell count.
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006. My own EPO was more than 800 initially so I never tried EPO. Positive response with Thalidomide + Prednisone during 2010-2013. Now trying Revlimid + Prednisone.