Quote:
Originally Posted by Birgitta-A
Hi Mseth,
I don't think your mother's doctor has more practical experience than for example professor Hellström Lindberg who has been working with MDS patients during many years. http://www.ncbi.nlm.nih.gov/pubmed/18559873.
You could tell him that he could increase his MDS treating experience and give the EPO + Neupogen (or a similar drug) a chance.
Kind regards
Birgitta-A
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Hi Birgitta-A,
Thanks for the link. While going through the study, I came across another study on pubmed, though done in 2001 : http://www.ncbi.nlm.nih.gov/pubmed/11146570
which shows that response in transfusion dependent patients, even with G-cSF addition is low and chances of transforming into AML high. I dont know, but maybe this is what the doctor fears. Nevertheless, I will go equipped with copies of all studies and ask him why he will not give it a try.
Thanks v much.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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