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Iron
Hi Mseth,
It is common that MDS patients have increased ferritin at dx.
I have been on chelating drugs most of the 7 years since dx. After 40 units of blood I started to receive Desferal from a home pump to my port-a-cath during 4 days in connection with txs.
I have controlled my liver and heart once with MRI but that was several years ago - I had not a trace of iron in my heart.
I tried Ferriprox + Desferal but my WBC didn't like Ferriprox. Then we tried Exjade + Desferal. My WBC could only tolerate a low dose Exjade.
Now I am receiving Desferal again in connection with txs - Desferal isn't giving me any adverse effects.
I dare not take IP6 or wheatgrass juice because I am afraid of adverse effects.
You could post at "Transfusions" - there have been many posts about iron overload.
Kind regards
Birgitta-A
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