[Susan]

Hi Casper, Oh no, sorry to hear that. Mine was only late by 3 days once and my hbn stayed close to the same. Very little change with other counts. You work with your Alexion rep don't you? Could you have Aplastic Anemia too? I'd think you should be recovered by now.

Did you know that since the other PNH support site pnhdisease.org is not working, there is a private Facebook group called PNH Patients - Support? There are about PNH 600 patients members, best place to get PNH input for the time being. Some have AA too. Sometime around Fall, all of us, PNH, AA, MDS, AML, etc patients will move over to a new AAMDSIF sponsored support site. Neil will announce it once it's ready.