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Emma,
I had a small relapse 6 months after transplant and was treated with vidaza for 6 cycles. Prior to transplant, I did not respond to vidaza, but post-transplant I responded pretty well. I have been in full remission since february 2015.
I am sure that response varies from person to person, but i think that from my experience, you may not want to discount vidaza simply because it did not work prior to transplant.
I know that some of the common treatments fall into 1)vidaza/decitabine (with or without) 2) donor lymphocyte infusion 3) conventional chemo 4) new transplant.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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