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Old Sun Dec 7, 2014, 11:04 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Interesting post - I was diagnosed with MDS two years ago - but had hive like skin nodules, aches and fatigue for two years prior to the MDS diagnosis. Originally thought it might be Lyme Disease and was initially treated for that - but from whatever origin inflammation and autoimmune symptoms preceded any abnormal blood counts. I'm still not convinced the autoimmune process wasn't triggered by Lyme - or tick bites - that then triggered an autoimmune reaction in the bone marrow that turned into MDS...
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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