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Old Sat Jan 17, 2015, 10:45 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Lovely to read that you can look forward to some relief and improvement in your wellbeing very soon! I'm sending you a big hug for being so positive even though you've been so unwell.

One other thing which could possibly be useful for you, Julianna, in the future. I know you must be struggling to eat at all at present, but I just wanted to share with you my own experience in case it could be helpful to you. Since having MDS I am much more prone to having excess mucous and sinus/upper respiratory infections. One thing that really works for me is to avoid dairy and cane sugar products - and especially in combination. If I ever succumb to eating something like cheesecake, I will always regret it because in the early hours of the morning I'll wake up with mucous running down the back of my throat and will end up coughing - that's the end of sleep for me!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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