My mother was 62 when she was finaily was told she had MDS.. It took about a year before the doctor finaly sent her to a Hemotoligst
She did take Revlimid. It did nothing. she is doing good right now she is 65 now with no medician.. But the only cure is a BMT. All these drugs do is just a way to prolong your life a few years. BMT is the only real chance right now.. this is a good site to read from a women who is cured from MDS
http://www.mdssurvivor.com/
there are a lot of people like this.. Drugs compainies are not trying to find a cure there is no profit in this.. just trying to find drugs to keep you living longer so you can keep taking the drugs.. She will either goto
http://www.mdanderson.org/ or
http://main.uab.edu/bmt/show.asp?durki=50890
My mom is in denial about her condition and she had been tell me that she was doing better. But her sister talked to me and told me the last doctor appt the Dr. told her that she had a bout 15 months left and would have to have the BMT... BMT will cure or kill. I have cried every day.
My mom tells my father she is doing better and me this for the past 2 years..
jay