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Sounds like your son's virus provoked a hemolytic crisis secondary to his PNH. What is his clone size? In addition, it does sound like the cyclosporine is causing a bit of microvascular damage because, if I understand it correctly, that is why he has some schistocytes in his smear. Be aware that PNH and microangiopathy together increase the risk of blood clots. Not to add to your worry but it's something to keep in mind.
It's so sad our kids have to ask questions like "what if my treatment doesn't work?". All that worry on such little shoulders but you're right, there are options that will restore his health completely. Stay positive!
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.
www.caringbridge.org/visit/evanmacneil
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