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Old Sat Dec 21, 2013, 12:33 PM
Sue H. Sue H. is offline
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Join Date: Dec 2013
Location: Switzerland
Posts: 19
Dear Relentless,

I understand your concerns and it's not an easy decision. Neil Young at NIS (I asked once for his opinion on our situation) had reservations about use of Promacta outisde of a clinical trial as not enough evidence on long - term use.
As we had choice of Revolade (Promacta), another ATG (my husband had many side - effects from first course of horse ATG, only limited response and took a long time to recover) or transplant we decided to opt for Revolade. In terms of quality of life, my husband has had quite a good year this past year and has so far tolerated the drug well.
Ultimately I think you have to go with your gut feeling on which path to take and then trust. Sounds like you have a lot of faith in your physician, which I think is important.
Wishing you all the very best and hoping things become clearer for you.
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