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Old Wed Feb 17, 2016, 08:08 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
I haven't heard of the IV drip - I am currently doing monthly nebulizer after BMT - I do have a transplant friend who did an oral drug for a long time - which he describes as disgusting and he hated - until he recently switched to the nebulizer form - perhaps that is an option - albeit an unpleasant one - but better than the long drive. Contacting aids center sounds like a good idea too

Best,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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