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Old Sat Apr 7, 2018, 11:50 AM
Joce0910 Joce0910 is offline
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Join Date: Apr 2018
Posts: 4
I just started on soliris yesterday; I was DX with PNH and secondary aplastic anemia in december. I did series of ATGAM treatment then was put on cyclosporine and promacta I was responded to the meds except this last month my LDH kept rising fast. My doctor wanted to start me on Soliris to prevent anymore hemolysis and she wanted to prevent any transfusion in case we decide to go to transplant route. I am young just turned 30 and was wondering if anyone stopped soliris, I have read your on it for life unless you get a transplant. My first time receiving soliris was no bad only complain is they gave me IV bendryal along with steriod before the medication and that made the experience not well. I felt loaded up from the bendryal and my soliris wasnt even "hunged" yet. It was a little frustrating but the medicine itself is a miracle drug my eyes are not yellow today and have more energy then usual.
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