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Old Wed Jul 4, 2012, 12:02 PM
donna j. donna j. is offline
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Join Date: Sep 2011
Location: long island, new york
Posts: 110
Dear Tserdogan

Thank you. Are you saying you needed transfusions for 11 months? How often? Did your dr. give you any treatments? Did the blood just finally flip over? My dr. is now saying mine won't because of the B-Cells and antibodies. I think she may be speculating though.

Also, Nicolle and Tserdogan,

I just stopped Prednosone on 6/19/12 and Valcyte on 5/21/12. My whites and platelets only began to rise again on 5/28/12 with a continuing upward trend so maybe there is hope the HGB will start to come around.

thank you both!

Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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