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Thank you Ruth. We discussed this topic yesterday at the doctor's office. He is refering my husband again to SCCA in Seattle for a loook see. I feel like any of the main places are as good as one another for diagnosis and treatment. The information is available to all doctors and they have contacts at places other than where they practice so I contributed to AAMDS and hope some of that money goes to research so more can be learned at any place that has studies going on. Now on to the hospital for a transfusion.
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Caregiver for husband
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