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Old Tue Feb 7, 2012, 05:07 PM
riccd2001 riccd2001 is offline
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Join Date: Aug 2010
Location: Burlington,Ontario,Canada
Posts: 186
New MDS survey...

The Aplastic Anemia and MDS International Foundation is conducting an online research survey for MDS patients/caregivers. Check it out and take part if you want. Celgene is indirectly involved.

http://www.aamds.org/staying-treatment

The survey seems to be open to all, but to complete the survey you will need a ZIP code (e.g., 14020 -Batavia N.Y.)
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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