View Single Post
  #4  
Old Mon Nov 28, 2011, 06:09 AM
squirrellypoo squirrellypoo is offline
Member
 
Join Date: Nov 2008
Location: London, UK
Posts: 458
Thanks for the update, Laura. I've checked in on your caringbridge page a couple times in the past weeks when I've been thinking about you.

I'm so sorry to hear things have only partially improved, and not enough to give you the quality of life you deserve. Who would've thought that the transplant would move you from one aspect of vampire territory (need for blood) into another (aversion to sunlight)? I'm glad to hear your gut is responding to the steroids, though it sounds like a lot of other baggage has come with it. At least you've got doctors at Boston that are willing to try different things, which always feels like progress to me. Hopefully you'll find some real improvements soon.
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
Reply With Quote