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I don't know what to say Laura. I cannot even begin to imagine all that you are dealing with these days.
With all the meds you are on, it makes it difficult to sort out things. Is there a possibility that the heat related problems are a disruption in your endocrine system.... Estrogen, progesterone and thyroid? All can cause huge temp swings for the slightest movement or minor increase in room temp.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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