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My dad was just diagnosed with MDS
My father was just diagnosed with a high risk form of MDS. ( RAEB - 1 ). This is all new to me so excuse me if I don't get the terms correct or confuse anyone on what I'm saying. This all happen so fast so I'm trying to get as much research as possible. I believe his blood count is as follows:
Hemoglobin - 8.2
White - 2.6
Platelet- 117
Bone Marrow Blasts 5 %
The revised (IPSS-R ) point count is 6
This past friday my dad had a port installed in his chest and had his first blood transfusion. He then got called in today and had 2 more blood transfusions.
The father is starting a clinical trial next Monday. ( A randomized Phase II study of Azacitidine in combination with Lenalidomide Vs Azacitidine Alone Vs Azacitidine in combination withVorinostat for higher risk Myelodysplastic Syndromes.
My dad currently lives in Farmington, Ct where he is going to St. Frances in Hartford.
Any feedback or recommendations would be greatly appreciated.
Thanks so much.
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