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Hi Kirby, thanks for the suggestion. the practice I'm in is one of the MDS centers of excellence my doctor specializes in MDS, I did see another doctor and he reaffirmed what my doctor is saying. I do not have an issue with the lack of a DX thats fine by me. My numbers do not justify any treatment, I don't have blasts and the Dr says he can't call MDS at this time but 'thinks' it might progress along that way. Did you see Dr Silverman? What hospital is he associated with?
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Tom- 62 yrs old, dx-eosinophilic fasciitis 2004, 1 yr prednisone resolves EF- now low counts, HGB has been ok... EF has been associated with MDS along with AA.
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