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Old Thu Mar 8, 2012, 02:08 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Because my husband has had a horrible experience with BMB and no sedation, he now takes sedation. A nurse told us last time, why would anyone even want to do it without sedation when having sedation makes it go so much easier! To each his own, I guess. I have such a low pain tolerance that they'd have to put me to sleep to even tell me I was going to have to have one.
Good luck to your Dad. My husband too has low platelets. He didn't respond to Vidaza and tried two clinical trials with no results. So we are now in a Watch and Wait mode. We see the doctor this Friday and will get labs. I'm just hoping and praying that the platelets are holding steady.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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