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Old Fri Mar 9, 2012, 07:23 PM
pray for my dad pray for my dad is offline
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Join Date: Mar 2012
Posts: 7
Quote:
Originally Posted by Greg H View Post
Hey PFMD!
Though travel might be an issue, depending on where you are in Canada, I can assure you that NIH trials are open to folks from all over the world. There's no charge for their screenings or treatment; you typically pay for your own travel and then, of course, bear the cost of follow-up with your local physician.

Here's the NIH page on visa info. I note a specific section for Canadian patients on that page:



Aside from NIH, the maker of Promacta, Glaxo Smith Kline, is recruiting patients in Canada for this trial.

Of course, all that's a bit premature until you know whether your Dad actually has MDS -- and has MDS that needs to be treated.

I'm glad to hear you're with a specialist. I listened in on a group phone call with Dr. Karen Yee at Princess Margaret Hospital in Toronto. She was terrific!

Good luck to you and your Dad!

Greg
Hi,
We are seeing Dr. L Larrat @ U of Alberta Hospital. She is the division director as well. I will look into the NIH options after the BMB is done.

Thank you so much!
God bless
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Dad, 63, male, low platelets, found out in 1994, was 50 in 1994, now it's 28. WBC ok, RBC slightly/occasionaly low. not on any meds other than vitamins.
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