[Dmassey]

My dad is almost 90. Has been treated with Aranesp for his MDS for two years. He doesn’t produce red blood cells. Recently has been diagnosed with swallowing issues and aspiration. Was hospitalized in August for cdiff colon infection, ecoli sepsis in blood, then again with aspiration pneumonia. He has chosen to discontinue all treatments and go home with hospice. My sister and I are taking turns staying with him. My question is what should we expect from here? There is very little information on the subject of end stage MDS. He had an Aranesp injection and a unit of blood while in hospital on August 11th. His hemoglobin was 8 afterwards when he left hospital. He has amazed us all as he is still mobile and his decline has been very slow after two months with no treatments or meds of any kind. He has begun producing bloody phlegm. Is this part of what happens near the end? Can anyone share their experience so we know what to expect from here.