Barb, thank you for your input. I am sorry to hear your situation and wish you the best. At the AA-MDS conference this weekend I did get some answers and like you, it seems the 5q is low risk unless you have other mutations. I was told I have 5q and the MLL mutation so those two together are not good and can lead to AML as I'm sure you know. I am waiting to see the results and actually read them to confirm about the MLL as I only got one back indicating 5q along with the BMB showing moderate hypocelluarity and dysplasia.
What other mutation do you have?
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