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Thanks for your replies.
My husband is a fit active 64 next month - no siblings or other possible donors.
We have asked about Vidaza,but been told that as he has "no particular chromosome abnormality",watch and wait is the way to go whilst he is still reasonably well.
Our consultant at Blackpool is excellent and appears to be aware of and involved with trials etc, I guess my problem is coming to terms with everything this illness has the power to do.
He has taken the diagnosis amazingly well, says its no use worrying about it,accepts it and wants to carry on as before as far as possible,obviously with a few adjustments to our lifestyle. Very positive about his future.
I am heartened to see a RAEB-2 patient still here 2 yr after diagnosis - it gives me hope that we may also have longer than consultations seem to imply.
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