Triumphe64- We are very lucky. We live in southern New Jersey and see the Philly skyline from our house, so through everything we have seen specialists at the Children's Hospital Of Phila. She has specialists in lots of different areas at CHOP: ENT, derm, immunology, GI, neuro for the seizures and now the hematogoly through the bone marrow failure center. We have also have talked with Dr Hoffman from Dana Farber/Children's Hospital in Boston, which specializes in ped MDS treatment and research. So super lucky to have the team we have now. Besides low WBC numbers and the dyplastic bone marrow cells, she is pretty healthy right now, so happy about that also
