[Kim2007]

I was diagnosed with SAA about six years ago and I did very well with ATG. For the past year or so my counts have been slowly creeping down. I had a bmb on 8/14 and I have relapsed. I was sent to see Dr. Venu at Rush in Chicago because my old specialist died. I am having the bone marrow slides sent to him and they are talking about putting me back on the cyclo for a bit to see if that makes a difference but I also have PNH so he wants to see if that has mutated before we make that decision because it can change treatment plan. Has anyone relapsed after ATG who also has PNH? I have a matching sibling if I need transplant but the new doc says transplant should be last option. My old doc leaned more towards just curing it. During this I am also going through a divorce after 16 years. Started having issues when I got sick. It was on hard both of us but I do get my insurance through my husbands job right now.