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Hey again NLJabbari,
After reading your post I totally understand why you felt the way you did regarding NIH. Your are obviously a wonderful Dad who is going to find a way to help his son.
We do have a man on the forums who is in that clinical trial for telomeres - Greg H. I am going to send you an e-mail with a post of his. He is going to a different doctor at NIH - that could be why you didn't get the response you expected. I would have thought your case would have been passed to the right place but then again - they are extremely busy - but that doesn't help your son does it? Maybe if you try to contact Greg H or Greg's doctor he might be able to help.
I wish you well and will send you a separate e-mail.
God Bless,
Sally
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