Quote:
Originally Posted by Cheryl C
Hello Ashleigh. So sorry to read that you have relapsed and sad to read that your family doesn't seem to understand the seriousness of your situation. Have you directed them to the AAMDS website - http://www.aamds.org/about/aplastic-anemia where they can learn more about the disease? The online learning centre at this site could be very helpful.
All the best and keep posting! |
Hi! My family have looked at stuff like that but they still dont think my fatigue affects me as badly as it does
However, i have a hospital appointment tomorrow and am going to discuss it with my doctor
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Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
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