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Relapse
Hi Alyse:
I began the taper in January of this year. My platelet count reached 160,000 at that time and whites were normal. My reds always needed a series of Procrit shots periodically (about every 3 months) to perk them up. I found out from Dr. Paquette's webinar on the AA website that he recommends 25mg reduction every three months unless there is a drop in counts. That should have taken me a year and a half. I was down to 50 mg/2 day in April and that put me out of range of effectiveness. Dr. Young at NIH said that's like not taking any drug at that point. My platelets dropped first, then reds, and finally whites. So now I take 125 mg/2day and Prednisone. But sadly I have had to have 9 platelet transfusions starting on July 15 and 2 units of reds. No response yet. Did I answer your questions? Sorry I didn't check back sooner to respond to you. How are you doing?
Karen
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Karen, diagnosed AA 2007; treated with ATG in 2007; currently on cyclosporine.
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