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Hi Edithr,
You haven't said the name of your doctor, but you can just google him and see where his area of expertise lie. Perhaps he is an AA expert, but if he isn't, it is worthwhile to have an AA expert on the side to consult with you and your doctor.
If your son has a sibling, and your doctor has not mentioned testing to see if he is an HLA match, that would be a red flag to me. If he has no sibling, then I'd be less concerned. I am assuming that your son is young.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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