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Old Sun Aug 28, 2011, 10:42 AM
evansmom evansmom is offline
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
Jody-

They can switch Trevor to MMF aka Celcept. It's another immunosuppressant not traditionally used in AA after ATG but it does pretty much the same thing. Do not let the docs switch him to tacrolimus because it will cause the same damage as cyclo. It's the same med basically. They switched Evan from tacrolimus to the MMF and it fixed everything while still keeping his immune system suppressed. Evan's team never recognized these cluster of symptoms, I had to force it under their nose. Very frustrating, but yes, you have to learn this stuff quick and thoroughly in order to help secure a fix.

Trevor is very lucky to have you in his corner.
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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