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Originally Posted by CatherineJ
Also, I have had blood in my urine consistently for a few months now with no UTI
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Have you been tested for PNH? It's another bone marrow disorder that commonly manifests as brick-coloured urine. It's even rarer than AA/MDS, but there are treatments available.
Quote:
and a consistent fever ranging from 99-100.5.
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I would get low-grade fevers stretching on for weeks, but these were always the signs of an infection somewhere, most often in a Hickman or PICC line or lurking elsewhere in the body. Post-transplant these were taken VERY seriously. You should have your doctors swabbing you like crazy and/or taking antibiotics...
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!
I've run 5 marathons now!! (PB 3:30!)