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Tytd,
Thank you for your kind words. And you are so right about clinical trials. Don is a living example. It took 6 months until finally going to NIH to get a diagnosis for Don. He entered the clinical trial for Campath and that eliminated his Trisomy 8 and I believe saved his life. But he was still very transfusion dependent for RBC's and platelets. Then he entered the Promacta trial and has been transfusion independent for almost 2 years.
Janire,
The way the US gets FDA approval for these drugs is through clinical trials like my husband has participated. Promacta is not yet an approved drug for MDS nor AA (I don't think). So it would have to be obtained through a clinical trial here. Do not know about in Spain.
Maybe you could access the article that Tytd referred to regarding AA/Promacta and show it to your doctor.
Best wishes and God Bless to you both,
Sally
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